PWS DESK Independent handbook · 中文 ES

This site is not the association. US crisis calls: pwsausa.org · 941-312-0400. We do not answer that phone.

Comic drawing of a rubber stamp and ink pad on blank paper
METHOD

Numbers stay if a paper or an official page supports them.

Phases are from Miller 2011. Sleep studies before GH are from the 2024 UK guidance and a 2022 sleep-medicine review. Drug status comes from FDA and ClinicalTrials. Gastric steps come from association alerts. Posters are labelled as posters.

GradeWhat it means here
PaperDOI checked on Crossref. Link text is journal plus year.
AgencyFDA listing or ClinicalTrials record. We quote the listed status.
Association alertPWSA USA pamphlets. Practical guidance, not a trial.
Poster / pressKept only when labelled as a poster or company statement.
Sources: American Journal of Medical Genetics, 2011 · Endocrine Connections, 2024 · Journal of Clinical Sleep Medicine, 2022 · FDA orphan listing, approved 26 March 2025