PWS DESK Independent handbook · 中文 ES

This site is not the association. US crisis calls: pwsausa.org · 941-312-0400. We do not answer that phone.

Comic drawing of keys on a hook beside a locked kitchen cabinet
ADULT

Before you sign a placement, ask who holds the kitchen key on weekends.

School food rules end at 18. Day programs and residences take over the kitchen. Some adults reach Miller's phase 4 and can feel full. Most do not. If a brochure talks about independent snacks, ask how that works in practice.

GUARDIANSHIP

Legal forms depend on the state or country

When you talk to a lawyer or case worker, food management can be described as a medical need. Use the food storage and emergency pages as background.

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GROWTH HORMONE

Age 18 is not an automatic stop date

Adult dosing needs a different clinic. Do not stop just because a paediatric list ended.

Sources: American Journal of Medical Genetics, 2011 · Endocrine Connections, 2024